Happy Thanksgiving

Happy Thanksgiving to everyone in the U.S.A.

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I went to Ciao for lunch today and I had pizza. It was good.

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Only The Brave

I went to the movies today and saw Only The Brave. It was very good.

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I had a good weekend. Saturday, I rode my bike. My mom and I went to our neighbor’s across the street for dinner. I had potatoes, carrots and onions. It was good. Today I rode my bike.

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Facebook Changes

Last night, I tried posting on one of my pages but it wouldn’t let me. I was able to type but it wouldn’t allow me to post what I typed. I went to help because I wondered why I couldn’t post when I was able to post on the 16. I found out facebook made changes to pages for page managers. They have a new page editor. Unfortunately, they now require page managers to pay to advertise their page or pages on facebook in order to post status updates on their pages. I’m disabled and on a fixed income. I can not afford to pay to promote my pages. The only way around it is to post here on my blog and share on facebook.

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I don’t have much to say right now. I just thought I would post something to let you know I’m still around. Have a good week.

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I wasn’t told I had cerebral palsy till I was 60 – Paula’s story

This is a reblog from another blog. I hope you like it as much as I did.

Scope's Blog

Guest blog from Paula, who contacted our helpline earlier this year after learning she had cerebral palsy – at the age of 60. Until then, she had never received any kind of support. Here she shares her experience.

In January 2015, soon after my mother died, my sister called me and told me there was something she needed to tell me – that I have mild cerebral palsy, and that my mother had never told me. I am 60 years old, and I had known nothing about it until then.

I went to my GP and asked him to read me the medical notes from my birth. Sure enough, there it was.

My mother and I had not been in touch for 23 years, for many reasons. I will never know why she didn’t tell me.

There was more of a stigma around disability at that time, so maybe that…

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When Able Bodied People Misuse Electric Mobility Scooters in Stores

When able bodied people misuse electric mobility scooters in stores because they are too lazy and they don’t want to walk they are taking them away from the people who need them the most.

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Chronic Severe Urinary Retention

I have been dealing with the inability to empty my bladder for many years and I really don’t know the real reason this is happening to me. I first had trouble at school when I was a teenager and for years I haven’t been able to use public bathrooms. My mom calls it shy bladder because I only had trouble using public bathrooms. I was able to pee in my own bathroom and when I went to my brother’s house.

I had a very severe case of swine flu in March of 1999 and I couldn’t keep anything down. I believe this is what actually worsened my problem. A few months later on July 1, 1999, my bladder problems got drastically worse. Not only could I not urinate, I couldn’t empty my bladder and I had to be catheterized several times because I couldn’t pee at all. I finally had my urethra stretched in April of 2001 which helped until I had my annual pap smear in March 2002. Then my symptoms returned so now I stopped having them because I thought that was what brought all my symptoms back in the first place. Twelve years ago, I had my urethra stretched a second time because I thought it would help since it helped the first time. However, it only made matters worse for me. I could not pee at all and I often had to go to the Emergency Room and get catheterized. I ended up having to wear a catheter in my bladder which would give me an infection every time.

I was told I have neurogenic bladder due to my Cerebral Palsy. However, I have never been able to find any actual proof. There is nothing that says C. P. causes this problem to occur and I have asked other people who have C. P. if they have trouble peeing. They said they can pee but they can not hold it in where as my problem is that I have the urge to pee but I can not urinate and empty my bladder.

I believe I have undiagnosed Interstitial Cystitis because when I have this problem and they check my urine, no infection is found. I believe they I developed this disease a few months after having a severe case of swine flu in March of 1999. I developed I. C. on July 1, 1999 and I had trouble peeing off and on for 16 years. As of today, all my symptoms have returned. I can not catheterize myself but I wish I could. I was in remission for 11 years which is the longest I’ve been in remission. I have tried everything to get myself to be able to pee but nothing helps. The shortest time I’ve been in remission is 10 months. I have no burning, pain or ulcers in my bladder. I just can not pee when I sit down to try to go. I don’t know why this is happening to me again. I do not believe I have neurogenic bladder.

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I was checking my e-mail and I found out my twitter account was somehow hacked. I changed my twitter password. If you get any follows from anyone claiming to be me, it is not me.

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